The National Sudden Infant Death Resource Center (NSIDRC)

Bereavement and Grief Materials:
A Selected Annotated Bibliography

Sample J, Besos y abrazos al aire [Flying Hugs and Kisses], Centennial, CO: Lifevest Publishing. 2006. 32p.

Flying Hugs and Kisses is a great Spanish language resource for families with children who have lost a baby to Sudden Infant Death Syndrome (SIDS). The book is about five children who creatively take on roles of support toward each other while showing their individual feelings about the death of their baby brother to SIDS.

Available from:
Authors to Believe In
Lifevest Publishing
4901 East Dry Creek Road #170
Centennial, CO 80122.
(877) 843-1007 (Toll-free)
atbi@lifevestpublishing.com (E-mail)
http://authorstobelievein.com/children.htm .

Sample J. Flying Hugs and Kisses. Centennial, CO: Lifevest Publishing. 2006. 32p.

Flying Hugs and Kisses is a great resource for families with children who have lost a baby to Sudden Infant Death Syndrome (SIDS). The book is about five children who creatively take on roles of support toward each other while showing their individual feelings about the death of their baby brother to SIDS.

Available from:
Lifevest Publishing
4901 East Dry Creek Road, #170
Centennial, CO 80122.
(877) 843-1007
atbi@lifevestpublishing.com (E-mail)
http://www.lifevestpublishing.com

DuBois EM. I never held you: A book about miscarriage, healing and recovery. Appleton, WI: DLSIJ Press. 2006. 137p.

In this book, author Ellen DuBois tells of her painful experiences after miscarriage and shares tools that helped get her through the toughest of times-from prayer to relaxation techniques. I Never Held You validates a woman's grief and gently suggests ways to get through the grief process.

Available from:
DLSIJ Press
1717 E. Calumet Street
Appleton, WI 54915.
5web8@dlsijpress.com (E-mail)
http://dlsipress.com

Association of SIDS and Infant Mortality Programs, Association of Clinicians for the Underserved (ACU)
Bereavement Support for the family suffering the death of an infant.
McLean, VA: ASIP/ACU. 2006.

This pocket-sized laminated tool card is part of the ACU's quick reference card series for family and preventive health. It provides clinicians the latest in evidence-based protocols for bereavement support in infant death.

Available from:
National SIDS/Infant Death Resource Center (NSIDRC)
8280 Greensboro Dr. Suite 300
McLean, VA 22102
(866) 866-7437
(703) 821-2098
(703) 821-2098 (Fax)
sids@circlesolutions.com (E-mail)
http://www.sidscenter.org/

Full-text downloading available at: http://www.sidsprojectimpact.com/_assets/documents/pdf/ACU-ASIP_Bereavement.pdf

Kane D. Missing Hannah: Based on a true story of Sudden Infant Death.
Bloomington, IN: AuthorHouse. 2006. 27p.

This simple picture book is written to help children understand the feelings and thoughts of a little girl who lost her sister. The message conveyed in the book will parents help parents tell the story of SIDS to children in a simple way.

Available from:
AuthorHouse
1663 Liberty Dr, Ste 200
Bloomington, IN 47403
(888) 519-5121
http://www.authorhouse.com

National SIDS/ID Resource Center (NSIDRC)
Helping children cope with grief when an infant dies.
McLean, VA: National SIDS/Infant Death Resource Center. 2005. 4 p.

This information sheet is intended as a resource for parents, child care providers, and other adults who must explain the death of a young sibling or friend to children and help them grieve. It discusses the nature of grief in children, the importance of allowing children to go through the normal grief process, common emotional reactions of children to death and loss, the unique effects of a sudden unexpected infant death in children, what children need to know when a SIDS loss occurs, how to seek support services, inclusion of children in funerals and family rituals. Includes a table from birth to teen on how each group react to death and help guidelines. Also includes selected organizations that provide support and services to bereaved children, list of resources to help children cope with loss.

Available from:
National SIDS/Infant Death Resource Center (NSIDRC)
8280 Greensboro Dr, Ste 300
McLean, VA 22102-2098
(866) 866-7437 (Toll-free)
(703) 821-2098
(703) 821-2098 (Fax)
sids@circlesolutions.com (E-mail)
http://www.sidscenter.org/

Full-text downloading available at: http://www.sidscenter.org

National SIDS/ID Resource Center (NSIDRC)
After Sudden Infant Death. Facing anniversaries, holidays, and special events.
McLean, VA: National SIDS/Infant Death Resource Center. 2005. 4 p.

This booklet discusses the impact of anniversaries, holidays, and special events on a family following the loss of an infant to sudden infant death syndrome (SIDS). The booklet discusses the feelings that family members can expect to experience on those days and offers them words of comfort. Includes list of organizations as helpful source of information on coping with a SIDS death or other early infant loss. Includes contact information of grief organizations.

Available from:
National SIDS/Infant Death Resource Center (NSIDRC)
8280 Greensboro Dr, Ste 300
McLean, VA 22102-2098
(866) 866-7437(Toll-free)
(703) 821-2098
(703) 821-2098 (Fax)
sids@circlesolutions.com (E-mail)
http://www.sidscenter.org/

Full-text downloading available at: http://www.sidscenter.org

National SIDS/ID Resource Center (NSIDRC)
The death of a child: The grief of the parents: A lifetime journey.
McLean, VA: National SIDS/Infant Death Resource Center. 2005. 4 p.

This booklet discusses parents' grief when a child dies. It discusses common and individual characteristics of parental grief, parental grief and a sudden infant death, fathers' grief, the impact of grief in special parenting situations, thoughts from grieving parents, and coping with the loss and moving on. It includes recommended resources list.

Available from:
National SIDS/Infant Death Resource Center (NSIDRC)
8280 Greensboro Dr, Ste 300
McLean, VA 22102-2098
(866) 866-7437(Toll-free)
(703) 821-2098
(703) 821-2098 (Fax)
sids@circlesolutions.com (E-mail)
http://www.sidscenter.org/

Full-text downloading available at: http://www.sidscenter.org

National SIDS/ID Resource Center (NSIDRC)
Selected resources for grieving parents, their families, friends, and other caregivers.
McLean, VA: National SIDS/Infant Death Resource Center. 2005. 4 p.

This information booklet provides selected books, booklets, videos, and other materials that are designed to help children and adolescents grieve when they are faced with the death of a child from sudden infant death syndrome (SIDS) or another cause. The listing is divided into ten sections: Resources helping children and teens dealing with loss; Resources helping children teens dealing with loss; Resources for health care professionals, caregivers, educators, clergy, and funeral directors; Journal articles dealing with bereavement and grief; Religious books dealing with loss; Spanish materials dealing with loss and grief; Listing of Selected Organizations; Selected journals and newsletters dealing with bereavement and grief; Selected publishers; and Selected Electronic Resources on Grief and Bereavement.

Available from:
National SIDS/Infant Death Resource Center (NSIDRC)
8280 Greensboro Dr, Ste 300
McLean, VA 22102-2098
(866) 866-7437(Toll-free)
(703) 821-2098
(703) 821-2098 (Fax)
sids@circlesolutions.com (E-mail)
http://www.sidscenter.org/

Full-text downloading available at: http://www.sidscenter.org

O'Connor J.
Helping your child understand death: Children and grief.
Grand Rapids, MI: Baker Publishing Group. 2005. 252p.

Children and grief is a compassionate, understanding resource, full of ideas to help support a child through the questions, emotions, and struggles that death inevitably brings. Author provides tips on how to explain the physical reality of death and terminal illness, answer questions in specific, age-appropriate ways, help a child grieve by supporting his or her unique emotions and provide a sense of security amid disorienting events such as funerals. Includes epilogue, Appendix A includes questions and answers about funeral process, Appendix B provides list of grief resources.

Available from:
Baker Publishing Group
Box 6287
Grand Rapids, MI 49516-6287
(616) 676-9185
(616) 676-9573 (Fax)
(800) 877-2665 (Toll-free)
http://www.bakerbooks.com

Turner M.
Someone very important has just died: Immediate help for people caring for children of all ages at the time of a close bereavement.
Philadelphia, PA: Jessica Kingsley Publishers. 2005. 40p.

Someone very important has just died is a practical book written for those caring for children and teenagers suffering a close bereavement, suitable for anyone regardless of their background and beliefs. This much needed resource is intended for use immediately or soon after the death has occurred, provides a detailed guidance on what adults might say and do to help children. It overviews the sensitive issues of what to tell children, how far to include them in events immediately after the death, how to tend to their physical and emotional needs. Includes information on where to go to obtain longer-term bereavement support.

Available from:
Jessica Kingsley Publishers
400 Market St., Ste 400
Philadelphia, PA 19106
(215) 922-1161
(215) 922-1474 (Fax)
orders@jkp.com (E-mail)
http://www.jkp.com

First Candle/SIDS Alliance
Como Superar La Muerte De Un Bebe [Surviving the death of a baby].
Baltimore, MD: First Candle/SIDS Alliance. 2004. 11p.

This Spanish brochure serves as an aid to parents who have lost a baby to Sudden Infant Death Syndrome (SIDS). It covers topics like grieving process parents undergo, coping with birthdays, anniversaries and holidays, trying for another baby, children's reactions to death, how grandparents undergo double grief, how childcare providers react to the grief. Furnishes contact information to stop unsolicited reminders of the baby's death. Presents suggestions to friends and relatives in a do's and don'ts format to assist SIDS parent's grief. Includes two poems entitled “Last day” by Deborah R. Gemmill and “The journey of living on” by Sharon A. Dunn.

Available from:
National SIDS/ ID Program Support Center (NSIDPSC)
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
(410) 415-6628
(800) 221-7437 (Toll-free)
(410) 653-8709 (Fax)
kathleen.graham@firstcandle.org (E-mail)
http://www.firstcandle.org

National SIDS/ID Resource Center (NSIDRC)
Responding to a sudden, unexpected infant death: The professional's role.
Vienna, VA: National SIDS/Infant Death Resource Center. 2004. 4 p.

This fact sheet provides a brief overview of the various professionals involved when a sudden infant death occurs, like who arrives at the scene first, at the hospital, who performs the autopsy, who investigates the death scene, in the days ahead who helps in the grieving process. It furnishes responsibilities and how these professionals can help. Includes glossary for Coroner, Medical Examiner, Pathologist, and Forensic Pathologist. Also includes resource list and bibliographic references.

Full-text downloading available at: http://www.sidscenter.org

National SIDS/ID Resource Center (NSIDRC)
Sudden unexpected infant death: Information for the emergency medical technician
Vienna, VA: National SIDS/ID Resource Center (NSIDRC), 2004. 4p.

This fact sheet provides an overview of the Emergency Medical Technician (EMT) role in responding to a sudden infant death. It covers three major roles of the EMT, providing immediate emergency medical care to the baby, observing, assessing, and documenting the scene, offering support and consolation to parents/caregivers. Also discusses potential grief responses, causes of sudden infant death, and the differences between sudden infant death syndrome (SIDS) and child abuse. Includes additional resources, bibliographic references.

Full-text downloading available at: http://www.sidscenter.org

McClain M, Arnold J, Longchamp E, Shaefer J.
Bereavement counseling for sudden infant death syndrome (SIDS) and infant mortality: Core competencies for the health care professional.
Stony Brook, NY: Association of SIDS and Infant Mortality Programs (ASIP), 2004. 39p.

This guide presents core competencies essential for the health care professional to provide appropriate and effective bereavement counseling and support for a family. Also includes references and suggested reading list on infant mortality statistics, risk reduction education, bereavement counseling support, helpful books for children, list of ASIP publications and collaborating organizations. Includes list of organizations dealing with grief and bereavement.

Available from:
The Association of SIDS and Infant Mortality Programs (ASIP)
National SIDS & Infant Death Project IMPACT
8280 Greensboro Drive, Ste 300
McLean, VA 22102
(800) 930-7437 (Toll-free)
(703) 902-1260
(703) 902-1320 (Fax)
info@sidsprojectimpact.com (E-mail)
http://www.sidsprojectimpact.com (Web site)

Stewart A, Dent A.
Sudden death in childhood: Support for the bereaved family.
St Louis, MO: Butterworth Heinemann. 2004. 234p.

This book provides nurses, midwives, counselors, teachers and social workers with a practical study of how health professionals can help a family cope with the unexpected death of a child. It focuses on three key sections, Contexts and perspectives of bereavement, Family member's experiences, perceptions and meanings of bereavement and Professional practice, care of bereaved families. Includes appendices on national organizations to help bereaved parents and children, websites on bereavement, resources for bereaved children and their parents, books for bereaved parents and grandparents, books for bereaved children and young people, helping parents support their surviving children, resources for health professionals working with children and families, taking photographs, planning a funeral, a bereavement assessment tool, complexities of grief and setting up a support group for professionals.

Available from:
Elsevier Butterworth Heinemann
11830 Westline Industrial Dr.
St. Louis, MO 63146
(800) 545-2522
(800) 535-9935 (Fax)
usbkinfo@elsevier.com (E-mail)
http://us.elesevierhealth.com (Web site)

Lothrop H.
Help, comfort and hope after losing your baby in pregnancy or the first year.
Cambridge, MA: De Capo Books /Perseus Books Group. 2004. 294 p.

Hannah Lothrop the author, through her own experience with miscarriage as well as through the voices of other parents who have suffered the devastation of their baby's death, guides parents through the experience of bereavement, from shock and disbelief to renewal and growth. This warm, insightful book also provides specific information for caregivers: hospital staff, clergy, relatives, or counselors. Thoughtful questions throughout help readers assess their emotions and identify their needs, and an extensive list of resources provides additional sources of support.

Available from:
Perseus Books Group Customer Service
2300 Chestnut Street
Philadelphia, PA 19103
(800) 371-1669
(800) 453-2884 (Fax)
perseus.orders@perseusbooks.com (e-mail)
http://www.perseusbooksgroup.com/dacapo/index.jsp (Web site)

Wolfelt AD.
A child's view of grief: A guide for parents, teachers, and counselors.
Fort Collins, CO: Companion Press. 2004. 52p.

In this informative, easy-to-read booklet, Dr. Wolfelt explains how children and adolescents grieve after someone loved dies and offers helping guidelines for care giving adults. An excellent, concise resource for parents of grieving kids.

Available from:
Companion Press
The Center for Loss and Life Transition
3735 Broken Bow Road
Fort Collins, CO 80526
(970) 226-6050
(800) 922-6051 (Toll-free)
wolfelt@centerforloss.com (E-mail)
http://www.centerforloss.com (Web site)

Nelson T.
A guide for fathers: When a baby dies.
St. Paul, MN: A Place to Remember. 2004. 66 p.

This helpful pocket book written to help fathers in the early hours and days after a baby dies whether it is a miscarriage, stillbirth or early infant death, many of the issues are the same. Provides men with timely suggestions as they make their way through the grief process following the death of their baby. The back of the book includes author's original, A Fathers Story. Also appended is a resource list.

Available from:
A Place to Remember
deRuyter-Nelson Publications, Inc.
1885 University Avenue, Suite 110
Saint Paul, MN 55104
(612) 645-7045
(800) 631-0973 (Toll-free)
(612) 645-4780 (Fax)
aptr@aplacetoremember.com (E-mail)
http://www.aplacetoremember.com/ (Web site)

Stillwell EE, Behme TJ, Pierce GFA, ed(s).
The Death of a Child: Reflections for Grieving Parents.
Chicago, IL: ACTA Publications. 2004. 160 p.

This book is filled with stories of people who have lost a child and how they dealt with the reality of that event. This collection of life-giving lessons touches on a wide range of emotions and situations that parents may encounter after the death of their child.

Available from:
ACTA Publications
4848 N. Clark St.
Chicago, IL 60640-4711
(800) 397-2282 (Toll-free)
(703) 271-1030
(800) 397-0079 (Fax)
actapublications@aol.com (E-mail)
http://www.actapublications.com/ (Web site)

Johnson J, Johnson SM, Sieff J.
Children die, too: A book for parents who have experienced the death of a child.
Omaha, NE: Centering Corporation. 2004.10p.

This booklet, intended for parents whose child has died, describes the feelings that bereaved parents and others close to them are likely to experience after such a death. The most common feelings experienced by bereaved parents are shock, anger, sadness, depression, and guilt. The booklet also discusses the effects of a child's death on the parent's marital relationship, surviving siblings, grandparents, friends, stepparents, and single parents. A list of reading materials on grief for parents and children is included.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Johnson J, Johnson SM, Bernardino AE, trans.
Los Ninos Tambien Mueren: Para Padres que Estan Sufriendo la muerte de un hijo [Children die: too: A book for parents who have experienced the death of a child].
Omaha, NE: Centering Corporation. 2004. 24 p.

This Spanish-language booklet, intended for parents whose child has died, describes the feelings that bereaved parents and others close to them are likely to experience after such a death. The most common feelings experienced by bereaved parents are shock, anger, sadness, depression, and guilt. The booklet also discusses the effects of a child's death on the parents' marital relationship, surviving siblings, grandparents, friends, stepparents, and single parents. A list of reading materials on grief for parents and children is included.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org (Web site)

Compassionate Friends, Inc.
Principles of the Compassionate Friends.
Oak Brook, IL: The Compassionate Friends. 2004. 2 p.

This pamphlet explains the principles of The Compassionate Friends, a self-help organization for bereaved parents and siblings. The primary purpose of the organization is to assist parents and siblings in the positive resolution of the grief experienced upon the death of a child, and to support their efforts to achieve physical and emotional health. The pamphlet also provides information on the organization's services, how it is funded, and the methods it uses to help parents cope with their grief.

Available from:
The Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522-3696
(877) 969-0010
(630) 990-0246 (Fax)
nationaloffice@compassionatefriends.org (E-mail)
http://www.compassionatefriends.org/ (Web site)

Johnson J, Johnson M, Bock R, Dannen C, Hasslinger ML, et al.
Miscarriage: A book for parents.
Omaha, NE: Centering Corporation. 2004. 24 p.

This book provides support for parents who have experienced the death of a baby through miscarriage.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Compassionate Friends, Inc.
When a child dies... The compassionate friends can help.
Oak Brook, IL: The Compassionate Friends. 2004. 2 p.

This pamphlet describes the purposes and services of The Compassionate Friends, a self-help organization for bereaved parents and siblings. The purposes of the organization are to assist parents and siblings in the positive resolution of the grief experienced upon the death of a child, and to support their efforts to achieve physical and emotional health. The pamphlet describes purpose, lists membership information, their activities, activities of local chapters, chapter meeting, the origin and growth of the organization, explains how the organization is funded, and discusses the methods the organization uses to help parents cope with their grief.

Available from:
The Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522-3696
(877) 969-0010 (Toll-free)
(630) 990-0246 (Fax)
nationaloffice@compassionatefriends.org (E-mail)
http://www.compassionatefriends.org/ (Web site)

First Candle/SIDS Alliance
Surviving the death of a baby.
Baltimore, MD: First Candle/SIDS Alliance. 2003. 11 p.

This brochure serves as an aid to parents who have lost a baby to Sudden Infant Death Syndrome (SIDS). It covers topics like grieving process parents undergo, coping with birthdays, anniversaries and holidays, trying for another baby, children's reactions to death, how grandparents undergo double grief, how childcare providers react to the grief. Furnishes contact information to stop unsolicited reminders of the baby's death. Presents suggestions to friends and relatives in a do's and don'ts format to assist SIDS parent's grief. Includes two poems entitled “Last day” by Deborah R. Gemmill and “The journey of living on” by Sharon A. Dunn.

Compassionate Friends, Inc.
Understanding grief...When a child dies.
Oak Brook, IL: The Compassionate Friends. 2004. 2 p.

This pamphlet is intended to help bereaved parents through the grief process. The pamphlet discusses the emotional and physical reactions that parents may experience following the death of a child; the needs of other surviving children during this time; how the death may make parents question their beliefs; and ways in which parents can deal with their grief positively. A positive approach to grief resolution includes eating a well-balanced diet and getting moderate exercise, avoiding the use of drugs or alcohol to cope, taking time to decide what to do with the child's belongings, postponing major decisions, considering the feelings of the entire family when planning how to spend holidays or the birthday/death anniversary of the child who died, and seeking support from other bereaved parents.

Available from:
The Compassionate Friends
PO Box 3696
Oak Brook, IL 60522-3696
(877) 969-0010 (Toll-free)
(630) 990-0246 (Fax)
nationaloffice@compassionatefriends.org (E-mail)
http://www.compassionatefriends.org/ (Web site)

Johnson J, Johnson SM, Morgan T, et al.
Fathers grieve, too: For Fathers who have experienced the death of a child.
Omaha, NE: Centering Corporation. 2004. 4 p.

This brochure focuses on the emotional reactions of fathers who have experienced the death of a child, giving special attention to the effect of the loss on the bereaved father's marriage and job. The brochure also discusses men's grief and its relation to anger, talking, working, spouse relationship and crying. The brochure also is available in French and Spanish.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Bereaved Parents of the USA
For bereaved Grandparents.
Park Forest, IL: Bereaved Parents of the USA. 2003. 3p.

This brochure discusses two aspects of grief that a bereaved grandparent undergoes working through their own grief and being helpful to their bereaved child. It provides various tips in order to undergo these two aspects. It provides information on the Bereaved Parents of the USA along with the brochures available thru them.

Available from:
Bereaved Parents of the USA
PO Box 95
Park Forest, IL 60466
(630) 971-3490
(708) 748-9184 (Fax)
http://www.bereavedparentsusa.org/ (Web site)

Bereavement Services/Gunderson Lutheran Medical Foundation
When a baby dies: A handbook for healing and helping.
La Crosse, WI: Bereavement Services, 2003, 165p.

When a Baby Dies: A Handbook for Helping is written to help families heal and to provide support to healthcare professionals. The book covers individual stories of pregnancy and perinatal loss. There are specific chapters on miscarriage, ectopic pregnancy, stillbirth, newborn death, and loss in a multiple gestation pregnancy. Working from the fact that grief is normal the book also addresses the family issues that occur as each person grieves differently. Additional chapters address the roles of individual healthcare professionals and include checklists, which are helpful in caring for bereaved families. Includes bibliography.

Available from:
Bereavement Services/ Gunderson Lutheran Medical Foundation
1910 South Avenue
La Crosse, WI 54601
(800) 362-9567 (Toll-free)
(608) 775-4747
(608) 775-5137 (Fax)
bservs@gundluth.org (E-mail)
http://www.bereavementprograms.com (Web site)

Wolfelt AD.
The understanding your grief support group guide: Starting and leading bereavement support group.
Fort Collins, CO: Companion Press, 2003, 99p.

For bereavement caregivers who want to start and run an effective grief support group for adults, this guide discusses the role of support groups for mourners and describes the steps involved (such as deciding on group format, publicizing the group and writing meeting plans) in getting a group started. Responding to problems in the group is also addressed, as is a model for evaluating group's progress. It includes potential meeting plans that interface with understanding your grief and the companion journal as texts for group participants. In addition information is included on ceremonies, which can be used to support people in grief on special occasions and holidays.

Available from:
Companion Press
Center for Loss and Life Transition
3735 Broken Bow Road
Fort Collins, CO 80526
(970) 226-6050
(970) 226-6051 (Fax)
wolfelt@centerforloss.com (E-mail)
http://www.centerforloss.com

National Black Child Development Institute, Inc., National Institute of Child Health and Human Development
An activity book for African American families: Helping children cope with crisis.
Bethesda, MD: National Institute of Child Health and Human Development (NICHD). 2003. 92 p.

This activity book was developed in collaboration with African American communities to provide materials for parents to help their children cope with extraordinary crises, such as a terrorist attacks, as well as everyday hardships such as poverty and crime.

Available from:
National Institute of Child Health and Human Development (NICHD)
PO Box 3006
Rockville, MD 20847
(800) 370-2943 (Toll-free)
(301) 496-7101 (Fax)
NICHDInformationResourceCenter@mail.nih.gov (E-mail)
http://www.nichd.nih.gov/publications (Web site)

Faldet R, Fitton K, ed(s).
Cuando el embarazo termina en perdida: Nuestras Historias. [Our Stories of Miscarriage: Healing with Words]
Minneapolis, MN: Fairview Press. 2003. 203 p.

Fifty contributors including four men share vivid, real-life accounts of how miscarriage has affected their lives. By articulating often unspoken feelings and experiences the authors of these short stories, journal entries, and poems provide emotional support and healing comfort for others who like them have been touched by miscarriage.

Available from:
Fairview Press
2450 Riverside Avenue, South
Minneapolis, MN 55454
(800) 544-8207 (Toll-free)
(612) 672-4180
(612) 672-4980 (Fax)
press@fairview.org (E-mail)
http://www.fairviewpress.org (Web site)

Johnson J, Johnson M, Bock R, Dannen C, Hasslinger ML, et al.
Aborto Espontaneo: Un libro para los padres [Miscarriage: A Book for Parents].
Omaha, NE: Centering Corporation. 2003. 17 p.

This Spanish-language book provides support for parents who have experienced the death of a baby through miscarriage. A glossary of special words is included.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

MacArthur J.
Safe in the arms of God: Truth from heaven about the death of a child.
Nashville, TN: Thomas Nelson, Inc. 2003. 175p.

Renowned bible expositor John MacArthur tackles the question of infant death with detailed attention to scriptures that hold the answers. He uncovers a biblical perspective on such troubling questions as why did our child have to die, will we see our child again, how can we cope with our overwhelming sorrow, what is the age of accountability, do babies pay for the sins of their parents, can infants and even the unborn experience salvation, what is heaven like for children.

Available from:
Thomas Nelson Publishers
PO Box 14100
Nashville, TN 37214
http://www.thomasnelson.com/ (Web site)

Wigglesworth P.
Penny Bear's gift of love: A story of friendship between a grieving young boy and a magical little bear.
Marblehead, MA: The Penny Bear Company, Inc. 2003. 84 p.

The young child in the story, Johnathan Clarke, is very sad because his mother has just died. A magical little bear comes into his life to help him work through the first year without his mom. The story of their special friendship is told in month-by-month chapters by the little bear, known as “Penny Bear”. While written for children, the book offers readers of all ages the reassurance of knowing that the love and memories we have shared with special people in our lives remain with us forever.

Available from:
The Penny Bear Company, Inc.
Six Elmwood Rd.
Marblehead, MA 01945
(781) 639-2828
bear@pennybear.org (E-mail)
http://www.pennybear.org/ (Web site)

Peterson J.
Heart works: A father's grief.
Portland, OR: Heart-Works Publishing. 2003. 83 p.

Heart Works is a beautiful, full-color, with stunning photographs and writings of a father as he travels through the grief of his daughter's death. This book is written by a father, speaks of his love for his daughter and the ways in which her death has changed him. This book is his therapy. He pairs his own photographs with meditations on grief-related words, taking time to explore his journey. Through his experiences, we learn what grief really is. He explores the paralyzing depths of grief, the awesome power of love and the light of hope from a man's perspective. This is a book for all, not only the bereaved, because it allows one to consider their own lives, their loves, their disappointments and heartaches

Available from:
Heart-Works Publishing, LLC
930 SE Sandy Blvd.
Portland, OR 97214
(503) 236-1350
(503) 236-8555 (Fax)
jerre@negativeperfection.com (E-mail)
http://www.heart-works-publishing.com (Web site)

DeYmaz L.
Mommy, please don't cry: There are no tears in heaven.
Sisters, OR: Multomah Gifts. 2003. 48 p.

Mommy, Please Don't Cry is a book of love, comfort for mothers who have experienced the deep sorrow of losing a child. Serene Illustrations frame gentle words that describe heaven from a child's perspective. With room for the reader's personal reflections at the end of the book, every page is a poignant gift of hope and healing.

Available from:
Multnomah Gifts
Div. of Multnomah Publishers, Inc.
PO Box 1720
Sisters, OR 97759
(541) 549-1144
information@multnomahbooks.com (E-mail)
http://www.multnomahbooks.com/ (Web site)

Schwiebert P.
We were gonna have a baby: But we had an angel instead.
Chicago, IL: ACTA. 2003. 24 p.

This special book for children who have recently lost a sibling-to-be, narrated by a young boy who shares his and his family's disappointment and grief over a miscarriage or loss of his baby brother or sister. It both directly addresses the issues that children may face over the loss of an unborn child and also gives parents practical and sensitive advice to help their children cope with the death. The practical advice at the end of the book offers support and guidance to parents and grief ministers as they help children handle the stress of a miscarriage or stillbirth. The book is recommended for children 2 and older.

Hoppenbrouwers T, Hodgman J.
SIDS
Los Angles, CA: Women's and Children's Hospital, 2003. 93 p.

The purpose of the book is to provide practical information to parents who have lost a baby to SIDS and to people who come in contact with those parents. Includes glossaries, six appendices that comprises of useful resources.

Available from:
Women's and Children's Hospital
Newborn Division Rm L919
Attn: Dr. Toke Hoppenbrowers
1240 Mission Rd.
Los Angles, CA 90033
(818) 222-5375 (Fax)
toke@hoppenbrowers.net (e-mail)
http://www.hoppenbrouwers.net/toke/sids.asp (Web site)

Horchler, J.N.; Rice, R.
SIDS and infant death survival guide: Information and comfort for grieving family and friends and professionals who seek to help them. Third Edition.
Cheverly, MD: SIDS Educational Services. 2003. 320 p.

This book, written by and for sudden infant death syndrome (SIDS) and infant death survivors, addresses the issues facing family members, friends, and helping professionals who must deal with the death of an infant from SIDS. A list of national and international organizations that provide counseling, research data, and grants on SIDS and related topics is appended.

Available from:
SIDS Educational Services
2905 64th Ave.
Cheverly, MD 20785
(877) 935-6839 (Toll-free)
(301) 322-2620
(301) 322-9822 (Fax)
SIDSES@aol.com (E-mail)
http://www.sidssurvivalguide.org/ (Web site)

Keens TG.
SIDS: Based on a Talk by Thomas G. Keens, M.D.
Rancho Cordova, CA: California SIDS Program. 2003. 8p.

This booklet is based on a talk given by Thomas Keens, MD, Professor of Pediatrics, Physiology and Biophysics, Division of Pediatric Pulmonology, Children's Hospital Los Angeles, California, on February 24, 2000. Dr. Keens has been involved in the sudden infant death syndrome (SIDS) community for over 20 years as an active member of SIDS advisory councils in California, a co-principal investigator of the Collaborative Home Intervention Monitoring Evaluation Study, the author of numerous articles on SIDS, an active guest lecturer throughout the world, and a recipient of the Senator Daniel E. Boatwright Award for extraordinary public service on behalf of Californians touched by SIDS. The booklet provides Dr. Keens' answers to the following questions: What is SIDS?; How long have SIDS deaths been occurring?; What usually happens when a baby dies from SIDS?; Could there be more than one reason why babies die from SIDS?; What have researchers found out?; Is it true that some babies are at higher risk for SIDS than others?; Is SIDS a disease?; What are the most likely causes of SIDS?; Did I do anything to cause my baby to die from SIDS?; Will our next baby be in danger of SIDS?; How can I get through the grief that overwhelms me from losing my baby?; and How can I find the help I need?.

Available from:
California SIDS Program
11344 Coloma Road, Suite 560
Gold River, CA 95670-6304
(916) 851-7437
(800) 369-7437 (Toll-free in California)
(916) 851- 5937 (Fax)
info@californiasids.com (E-mail)
http://www.californiasids.com/ (Web site)

Throckmorton ML.
Not just another day: Families, grief and special days.
Omaha, NE: Centering Corporation. 2003. 16 p.

This booklet provides suggestions to help families face birthdays, anniversaries, Hanukkah, and Christmas without a loved one. The booklet includes descriptions of children's grief patterns at ages 0 to 2, 3 to 5, 5 to 9, 9 to 12, and 12 to 18. Includes helpful resources.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Covington SN, Rich D Ed (s).
Silent birth...If your baby dies. Revised edition.
Minneapolis, MN: Fairview Press. 2003. 16 p.

This booklet was written by a clinical social worker to help prepare couples for the birth of an infant who has died. The booklet also is appropriate for couples who have experienced a miscarriage, an induced abortion due to a terminal birth defect, or a death shortly after birth. A resource list of books on pregnancy loss and bereavement is included.

Available from:
Fairview Press
2450 Riverside Avenue
Minneapolis, MN 55454
(800) 544-8207 (Toll-free)
(612) 672-4180
(612) 672-4980 (Fax)
press@fairview.org (E-mail)
http://www.fairview.org/

Compassionate Friends, Inc.
Stillbirth, miscarriage and infant death—Understanding grief.
Oak Brook, IL: The Compassionate Friends. 2003. 2p.

This pamphlet on miscarriage, stillbirth, and infant death is intended to prepare newly bereaved parents for the symptoms of grief, the possible impact of the loss on their marriage, and other potential consequences of the loss. The pamphlet discusses the normal symptoms of grief, the differences between mothers and fathers in their grief reactions, the potentially hurtful statements that may be made by well-meaning family members and friends, the issue of subsequent pregnancy, the needs of surviving siblings, the possible need for parents to re-examine their religious beliefs after an infant's death, the temptation to turn to alcohol or drugs to ease the pain of grief, and positive things parents can do to remember their child and to ease their own isolation and loneliness.

Johnson J, Johnson SM, Serlet M, Siert J, Taubert S.
Being with parents after their child or baby dies: For friends and relatives of grieving parents. Omaha, NE: Centering Corporation. 2003. 4p.

This brochure suggests ways in which friends and relatives can provide support to parents who experience the loss of an infant. Suggestions include calling the baby by name and encouraging the parents to share their feelings and memories by talking about their child. Suggestions for dealing with the grief of siblings are included. The brochure also is available in French.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/

Sanders DB.
When your baby dies...A gentle guide for teenage parents.
Rancho Cordova, CA: California SIDS Program. 2003. 18 p.

This booklet is written especially for teenage parents who have lost a baby to sudden infant death syndrome (SIDS). The booklet contains quotes from many other young parents of SIDS infants to let newly bereaved adolescent parents know that they are not alone. The quotes show how these young parents felt about the death and describe the kind of support they needed from other people. A list of things that family and friends can do for young bereaved parents is included.

Available from:
California SIDS program
11344 Coloma Road, Suite 560
Gold River, CA 95670-6304
(916) 851-7437
(800) 369-7437 (Toll-free in California)
(916) 851- 5937 (Fax)
info@californiasids.com (E-mail)
http://www.californiasids.com/ (Web site)

The Compassionate Friends, Inc.
El cuidado de los hijos supervivientes [Caring for Surviving Children...When a Child Dies]
Oak Brook, IL: The Compassionate Friends. 2002. 2 p.

This pamphlet offers guidelines to help parents who have lost a child to meet the needs of their surviving children. Parents are advised to do the following: be aware of the child's level of understanding before explaining the death to him or her; explain the death truthfully, without using euphemisms; know that grief will exaggerate the positive and negative feelings that existed between the deceased and surviving siblings; by your role modeling, show your children that it is all right to cry, to be sad, or to be angry. Some common reactions of children to a sibling's death and specific ways in which parents can help them are included.

The Compassionate Friends, Inc.
Nacidos muertos, abortos naturales y muertes infantiles--- entendiendo la congoja [Stillbirth: miscarriage, and Infant... Understanding grief].
Oak Brook, IL: The Compassionate Friends. 2002. 2p.

Johnson J, Johnson SM, Cunningham JA, Ewing S, Franciscony L trans.
Ese Momentito [This little while: for parents experiencing the death of a very small infant].
Omaha, NE: Centering Corporation. 2002. 32 p.

This Spanish-language book is intended to help parents who have experienced the death of an infant before or shortly after birth say goodbye to their baby and cope with their grief. The book discusses things parents can do at the hospital that will bring them happy memories in the future: they can see, hold, bathe, and name the baby; photograph or film the baby; and take with them mementos of their baby's life, including the blanket that the baby was wrapped in, clothes the baby wore, a lock of hair, the hospital bracelet, footprints and handprints, ultrasound pictures, and birth/death certificates. The funeral is the parents' opportunity to bid a formal goodbye to their child, and that goodbye can be as individual as they wish. A number of the options that parents have in this regard are noted. The book also discusses the tears and the emotions that will accompany the loss, such as guilt, anger, and fear; the benefits of reaching out to other people; things that will surface to remind parents of the death; ways to remember the baby on his or her birthday and holidays; ways in which parents can nurture themselves and their relationship during mourning; what to do with the baby's things; the grief of other children and how parents can support them; the reactions parents can expect from others; the grief of single parents; and what parents can do if they realize that their grief is still unresolved. A list of other Spanish-language materials on grief is included.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/

Al-Chokhachy E.
How can I help papa? : A child's journey through loss and healing.
Gloucester, MA: Works of Hope Publishing. 2002. 32p.

This illustrated story is about a close relationship between nine-year-old Pumpkin and her grandfather. It is about happy times spent together, their journey when papa gets sick and how she dealt with his approaching death. The girl gently learns how to grieve and even have the opportunity to say goodbye to her grandpa.

Available from:
Works of Hope Publishing
25 Clark's Road #308
Amesbury, MA 01913
(877) 887-2828 (Toll-free)
(978) 388-7520 (Fax)
Elissa@WorksofHope.com (E-mail)
http://www.worksofhope.com/ (Web site)

Aquarius Healthcare Videos
When a love one dies: Walking through grief as a teenager
Sherborn, MA: Aquarius Healthcare Videos, 2002, Multimedia Kit.

It features interviews with bereaved teens, because teens are most receptive to their peers. They speak from the heart, sharing candidly about their pain and healing. It covers topics such as surviving the first days, weeks, and months after the death, grieving the relationship lost, facing the future and rebuilding life. It gives insight not only to teenagers, but also to parents, teachers, and counselors who want to know to help bereaved youth. Excellent resource for support groups and schools.

Available from:
Aquarius Healthcare Videos
18 North Main Street
PO Box 1159
Sherborn, MA 01770
(888) 440-2963 (Toll-free)
(508) 650-1665 (Fax)
orders@aquariusproductions.com (E-mail)
http://www.aquariusproductions.com/ (Web site)

Aquarius Healthcare Videos
Facing death, facing grief: Teens helping at Camp Brave Heart
Sherborn, MA: Aquarius Healthcare Videos, 2002, Multimedia Kit.

In this video the teens talk to teens about grief. What to expect, what helps, what hurts, what can help one? Nine teens from diverse families share their grief, concerns, fears and ideas on how they have coped with the loss of a loved one.

Cacciatore-Garard J.
Dear Cheyenne: A journey into grief, A collection of love, faith and miracles. A book for bereaved parents and for those who love them.
Peoria, AZ: MISS Foundation. 2002. 145 p.

This book chronicles the emotions of a mother whose infant girl, Cheyenne, was stillborn. The book consists of poetry and journal entries by the bereaved mother dating from the day the baby died to the day she would have turned 2 years old. During this time the mother became pregnant again. The book includes suggestions to parents for handling their grief, information on selecting a funeral home and planning the funeral and memorial service, recommended memorial songs, suggestions for commemorating the baby's life, and a listing of national organizations that offer support to bereaved parents.

Available from:
MISS Foundation
PO Box 5333
Peoria, AZ 85385-5333
(623) 979-1000
(623) 979-1001 (Fax)
info@missfoundation.org (E-mail)
http://www.missfoundation.org/ (Web site)

Worden JW.
Grief counseling and grief therapy: A handbook for the Mental Health Practitioner. Third edition.
New York, NY: Springer Publishing Company. 2002. 248 p.

This book summarizes for mental health professionals what is known about grief and how to help those who are going through the experience. The book contains an extensive bibliography.

Available from:
Springer Publishing Co.
536 Broadway
New York, NY 10012-3955
(877) 687-7476
(212) 431-4370
(212) 941-7842 (Fax)
contactus@springerpub.com (E-mail)
http://www.springerpub.com/

National SIDS/ Infant Death Program Support Center (NSIDPSC), Bereavement Support Work Team
Guidelines for Medical Professionals: Providing care to the family experiencing perinatal Loss, Neonatal Death, SIDS or Other Infant Death.
Baltimore, MD: National SIDS/ Infant Death Program Support Center. April 2002. 12 p.

This publication presents guidelines for medical professionals who provide care to families who have experienced miscarriage, stillbirth, neonatal death, infant death, or sudden infant death syndrome. A list of 15 books and articles on perinatal bereavement care that may be useful resources for physicians, nurses, and other health care personnel is included. Appendixes contain a sample patient permission/authorization form for testing and disposition of the miscarried fetus, and a 3-page miscarriage, stillbirth, and infant death nursing care plan.

Available from:
National SIDS/ Infant Death Program Support Center (NSIDPSC)
1314 Bedford Avenue, Suite 310
Baltimore, MD 21208
(410) 415-6628
(800) 221-7437 (Toll-free)
(410) 653-8709 (Fax)
Kathleen.graham@firstcandle.org (E-mail)
http://www.firstcandle.org/ (Web site)

National SIDS and Infant Program Support Center (NSIDPSC), Bereavement Support Work Team
Guidelines for Christian clergy: providing care to the family experiencing perinatal loss, neonatal death, SIDS, or other infant death.
Baltimore, MD: National SIDS and Infant Death Program Support Center. April 2002. 8p.

This publication presents guidelines for Christian clergy who are trying to support families who have experienced miscarriage, stillbirth, neonatal death, infant death, or sudden infant death syndrome. A list of 10 books that may be helpful resources for parents and clergy in planning an infant's funeral service is included. Appendixes provide examples of scripture that would be appropriate for a baby's funeral service, subjects that clergy may want to discuss with the parents, activities that may help parents in their search for healing and comfort, and five factors that are necessary for healthy mourning. These five factors are a nurturing, supportive social network; adequate nutritional balance; adequate fluid intake; daily exercise; and daily rest.

Available from:
National SIDS /Infant Death Program Support Center (NSIDPSC)
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
(410) 415-6628
(800) 221-7437 (Toll-free)
(410) 653-8709 (Fax)
kathleen.graham@firstcandle.org (E-mail)
http://www.firstcandle.org (Web site)

National SIDS /Infant Death Program Support Center (NSIDPSC), Bereavement Support Work Team
Guidelines for Funeral Directors: Providing Care to the Family experiencing perinatal loss, Neonatal Death, SIDS or Other Infant Death.
Baltimore, MD: National SIDS / Infant Death Program Support Center. 2002. 7 p.

This publication presents guidelines for funeral directors and other mortuary professionals who provide services to families who have experienced miscarriage, stillbirth, neonatal death, infant death, or sudden infant death syndrome. A list of 12 books that may be helpful resources for parents and funeral directors in planning an infant's funeral is included.

Available from:
National SIDS/ Infant Death Program Support Center (NSIDPSC)
1314 Bedford Avenue, Suite 210
Baltimore, MD 21208
(410) 415-6628
(800) 221-7437 (Toll-free)
(410) 653-8709 (Fax)
Kathleen.graham@firstcandle.org (E-mail)
http://www.firstcandle.org/ (Web site)

Johnson J, Johnson M, Ewing S.
Your next baby: For parents and families who have experienced a miscarriage, stillbirth or infant death and are now expecting a baby.
Omaha, NE: Centering Corporation. 2002. 4 p.

This short pamphlet is primarily for parents and families who experienced miscarriage, stillbirth or infant death and are now expecting again. Anticipated emotions like anxiety, worry, feeling distant or close with the new baby are briefly stated, as are parental reactions after the delivery of a healthy baby.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Lister M, Lovell S.
Healing together: For couples grieving the death of their baby.
Omaha, NE: Centering Corporation. 2002. 16 p.

This pamphlet focuses on couples sharing the experience of the death and mourning of a child together. This compact book covers the memorial service to talking together, anticipated emotions for each sex are listed as well as strategies for sharing emotions together, and how to strengthen your relationship after the loss of your baby, talking to other children, and having next baby.

Available from:
Centering Corporation
PO Box 4600
Omaha, NE 68104
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org/ (Web site)

Al-Chokhachy E.
The angel with the golden glow: A family's journey through loss and healing.
Gloucester, MA: Works of Hope Publishing. 2001. 32 p.

This magical tale is based on the true story about a special little boy and his family. The little boy is born with a rare genetic neurological disorder. His family showers him love, not knowing how long he would survive. They celebrate his life and savor every moment they share together. This story offers hope and healing to parents, families and friends who have experienced the loss of a loved one.

Available from:
Works of Hope Publishing
25 Clark's Road #308
Amesbury, MA01913
(877) 887-2828 (Toll-free)
(978) 388-7520 (Fax)
Elissa@WorksofHope.com (E-mail)
http://www.worksofhope.com/ (Web site)

Roper J, Grimm L.ll.
Dancing on the Moon.
Cheverly, MD: SIDS Educational Services, Inc. 2001. 36 p.

This book tells the story of 5-year old Carly whose little brother, Nigel, dies of sudden infant death syndrome (SIDS). The book is suitable for children ages 3 to 8.

Available from:
SIDS Educational Services, Inc.
2905 64th Avenue
Cheverly, MD 20785
(877) 935-6839 (Toll-free)
(301) 322-2620
(301) 322-9822 (Fax)
sidses@aol.com (E-mail)
http://www.dancingonthemoon.org/ (Web site)

North Carolina Healthy Start Foundation
When SIDS happens, there is help.
Raleigh, NC: North Carolina Healthy Start Foundation. 2001.2p.

This brochure, intended for the families of sudden infant death syndrome (SIDS) victims who live in North Carolina, explains what SIDS is, what we know about the causes of SIDS at this time, why this happened, what happens after a baby dies of SIDS, and where SIDS parents in North Carolina can turn for help. The brochure provides contact information for the North Carolina SIDS Program, the SIDS Alliance of the Carolinas hotline, the National SIDS Alliance, the North Carolina Back to Sleep Campaign for SIDS Risk Reduction, the North Carolina Family Health Resource Line, and the American Academy of Pediatrics.

Available from:
North Carolina Healthy Start Foundation
NC Back to Sleep Campaign
1300 St. Mary's Street, Suite 204
Raleigh, NC 27605
(919) 828-1819
(800) 367-2229 (NC Family Health Resource Line)
(919) 828-1446 (Fax)
http://www.NcHealthystart.org (Web site)

California Department of Health Services, Maternal and Child Health Branch
Sindrome de muerte infantil repentina (SIDS): Lo que deben saber las guarderias infantiles y personas que cuidan ninos [Sudden Infant Death Syndrome (SIDS): What childcare providers and other caregivers should know].
Rancho Cordova, CA: California SIDS Program. 2001.13 p.

This booklet provides Spanish-speaking child care providers with information about sudden infant death syndrome (SIDS). The booklet covers the following topics: basic facts about SIDS, emergency procedures the child care provider should follow in a suspected SIDS case, how the child care provider may feel after the death, the investigative process that the law requires after every unexplained infant death and questions that investigators will probably ask the provider, how to explain the death to the other children in the child care group, questions to expect from the parents of the SIDS victim, and questions to expect from other parents whose children also are in the provider's care. The booklet stresses over and over that no one is to blame for a SIDS death. A form for recording emergency telephone numbers is included.

How do we tell the children? A step-by step guide for helping children two to teen cope when someone dies.
New York, NY: Newmarket Press. December 2001. 208 p.

This guide for helping children and adolescents cope with death is based on the author's 25 years of experience as a funeral director and on his consultations with child psychologists, family therapists, educators, and clergy. The guide is written primarily for parents, but it also can be used by counselors, educators, funeral directors, and other professionals who deal with grieving children. children what to expect, special gestures they can make, and questions they may ask.

Available from:
Newmarket Press
18 East 48th Street, 15th Floor
New York, NY 10017
(212) 832-3575
(800) 669-3903 (Toll-free)
(212) 832-3629 (Fax)
mailbox@newmarketpress.com (E-mail)
http://www.newmarketpress.com/

Sanders DB. Ed.
Helping Children Grieve: Sudden Infant Death Syndrome.
Rancho Cordova, CA: California SIDS Program. 2001. 8 p.

This booklet is directed at persons who care for children who have lost a sibling to sudden infant death syndrome (SIDS), including parents, grandparents, childcare providers, clergy, teachers, and other friends and relatives. When a baby dies suddenly with no warning, the whole family must cope with confusing emotions. Surviving siblings need a way to express their feelings, they need help and support, and they need to feel loved and valued. The booklet discusses the types of emotions that children may feel while grieving for an infant sibling who has died, including fear, anger, guilt, and sadness. The booklet also discusses when parents or others should worry about a child's reactions to the death; the importance of everyone talking about the death; what one should and should not say about where the baby went; siblings' participation in the funeral; ways in which siblings can remember the brother or sister who died; and how the level of understanding of death differs with a child's age. The booklet also is available in Spanish.

California Dept. of Health Services, Maternal and Child Health Branch
Facts and feelings: Sudden Infant Death Syndrome.
Rancho Cordova, CA: California SIDS Program. 2001. 14 p.

This booklet is designed especially for families and caregivers who have experienced a sudden infant death syndrome (SIDS) loss. The booklet provides information on what happens in a SIDS death; what causes SIDS; whether anyone is at fault in a SIDS death; whether the baby suffered; whether the baby vomited, choked, or suffocated; whether older children can die of SIDS; whether SIDS is caused by DTP shots or child abuse; whether breast feeding helps to prevent SIDS; whether SIDS is hereditary; the feelings experienced by bereaved parents, which are often very different; the effects of the death on surviving siblings; and where families can go for help and support. The booklet reminds childcare providers that they, too, should seek out help and support. Contact information for the California SIDS Program and two national support groups is provided.

California Department of Health Services, Maternal and Child Health Branch
Sudden Infant Death Syndrome: What childcare providers and other caregivers should know.
Rancho Cordova, CA: California SIDS Program. 2001. 13 p.

This booklet provides child care providers with information about sudden infant death syndrome (SIDS). The booklet covers the following topics: basic facts about SIDS, to help reduce the risk of SIDS, emergency procedures the child care provider should follow in a suspected SIDS case, how the child care provider may feel after the death, the investigative process that the law requires after every unexplained infant death and questions that investigators will probably ask the provider, how to explain the death to the other children in the child care group, questions to expect from the parents of the SIDS victim, and questions to expect from other parents whose children also are in the provider's care. The booklet stresses over and over that no one is to blame for a SIDS death. A form for recording emergency telephone numbers is included. A Spanish-language version of this booklet also is available.

Reed ML.
Grandparents cry twice : Help for bereaved grandparents.
Amityville, NY: Baywood Publishing Company, Inc. 2000. 127 p.

The author shares her experiences when her beloved grandson, Alex died. She shares excerpts from condolence letters written by third grade classmates of Alex's older brother, Curtis and tells how those letters helped her grieving family. The first chapter describes the joy felt from Alex's birth, his life, and the agony of his illness and death at two-and a half years; the confusion and the struggle to continue functioning; and Redd's personal frustration with the lack of applicable information about grandparent's grief. The following chapters look at grief theories of various authorities and their relevancy for parents and grandparents. Information the author learned from experience, study and correspondence with other grandparents is used in the chapters on helping themselves, helping the grieving parents, and their surviving children. Other chapters make suggestions for memorials and personal rituals as well as how others may assist or hurt. The closing chapter is an overview of the author's journey through grief. Appendices include selected poems, a list of resources and a bibliography.

Available from:
Baywood Publishing Company, Inc.
26 Austin Ave.,
PO Box 337
Amityville, NY 11701
(800) 638-7819 (Toll-free)
(631) 691-1270
(631) 691-1770 (Fax)
info@baywood.com (E-mail)
http://www.baywood.com/

Keens TG.
California Department of Health Services, Maternal and Child Health Branch
SIDS: Basado en una Platica por el Dr. Thomas G. Keens [SIDS: Based on a Talk by Thomas G. Keens].
Rancho Cordova, CA: California SIDS Program. 2000. 8 p.

This Spanish-language booklet is based on a talk given by Thomas Keens, MD, Professor of Pediatrics, Physiology and Biophysics, Division of Pediatric Pulmonology, Children's Hospital Los Angeles, California, on February 24, 2000. Dr. Keens has been involved in the sudden infant death syndrome (SIDS) community for over 20 years as an active member of SIDS advisory councils in California, a co-principal investigator of the Collaborative Home Intervention Monitoring Evaluation Study, the author of numerous articles on SIDS, an active guest lecturer throughout the world, and a recipient of the Senator Daniel E. Boatwright Award for extraordinary public service on behalf of Californians touched by SIDS. The booklet provides Dr. Keens' answers to the following questions: What is SIDS?; How long have SIDS deaths been occurring?; What usually happens when a baby dies from SIDS?; Could there be more than one reason why babies die from SIDS?; What have researchers found out?; Is it true that some babies are at higher risk for SIDS than others?; Is SIDS a disease?; What are the most likely causes of SIDS?; Did I do anything to cause my baby to die from SIDS?; Will our next baby be in danger of SIDS?; How can I get through the grief that overwhelms me from losing my baby?; and How can I find the help I need?.

The Dougy Center for Grieving Children, Portland
When death impacts your school: A guide for school administrators.
Portland, OR: The Dougy Center for Grieving Children. 2000. 57 p.

This guidebook is intended to help school principals and superintendents who are faced with a death or tragedy that affects their students, staff, or community. The guide discusses how to set up a Crisis Response Team, including who should be on the team, the roles of the team members, and the need for training them in grief and bereavement, and the tasks of the team before and during a crisis. Appendixes provide sample scripts for class announcements and sample letters to parents after a natural death, suicide, and violent death; and descriptions of other Dougy Center guidebooks for helping children and adolescents cope with grief.

Available from:
The Dougy Center for Grieving Children
3909 SE 52nd Avenue
PO Box 86852
Portland, OR 97286
(503) 775-5683
(503) 777-3097 (Fax)
help@dougy.org (E-mail)
http://www.dougy.org/

Canadian Foundation for the Study of Infant Deaths
Sudden Infant Death Syndrome: When babies leave the circle.
Calgary, Canada: University of Calgary, Advanced Media for Learning. 2000.

This videotape looks at the grieving process and provides support to parents who have lost an infant to sudden infant death syndrome (SIDS) within the context of traditional First Nations teachings. The video is aimed at Aboriginal Canadians, who have a particularly high rate of SIDS deaths. Traditional teachings say that a child chooses its parents because of what they can offer him or her. When a baby dies suddenly and unexpectedly, traditional teachings may help First Nations families cope with their loss. The First National believes that grief is a necessary process. The teachings encourage grieving parents to talk about their feelings with Elders, family, and friends. This video is narrated by Aboriginal Canadian actor Graham Greene.

Available from:
The Canadian Foundation for the Study of Infant Deaths
586 Eglinton Avenue East, Suite 308
Toronto, Canada M4P 1P2, Canada
(416) 488-3260
(800) 363-7437
(416) 488-3864 (Fax)
http://www.sidscanada.org/index.html

Galinsky N.
When a Grandchild dies: What to do, what to say, how to cope.
Houston, TX: Gal In Sky Publishing Company. 1999. 130 p.

The book is based on experiences shared by grieving grandparents as well as author's own personal experience as a bereaved mother. Part I discusses what feelings may be experienced at the beginning and how to recognize when grieving becomes unhealthy. Part II assists the grandparents communicate with their bereaved children and other living grandchildren, spouses, in-laws, and friends. Part III offers ways to cope from relaxation techniques, how to ask for help when help is needed. Also includes epilogue, bibliography, recommended resources, Internet resources, contact address to bereavement organization and index.

Available from:
Gal In Sky Publishing Company
PO Box 70976
Houston, TX 77270
(713) 880-8089
(713) 864-6689 (Fax)

California Department of Health Services, Maternal and Child Health Bureau
Hechos y sentimientos: Sindrome de muerte infantil repentina [Facts and feelings: Sudden Infant Death Syndrome].
Berkeley, CA: California SIDS Program. 1999. 14 p.

This Spanish-language booklet is designed especially for families and caregivers who have experienced a sudden infant death syndrome (SIDS) loss. The booklet provides information on what happens in a SIDS death; what causes SIDS; whether anyone is at fault in a SIDS death; whether the baby suffered; whether the baby vomited, choked, or suffocated; whether SIDS is contagious; whether older children can die of SIDS; whether SIDS is caused by DTP shots or child abuse; whether breast feeding helps to prevent SIDS; whether SIDS is hereditary; the feelings experienced by bereaved parents, which are often very different; the effects of the death on surviving siblings; and where families can go to get help and support. The booklet reminds childcare providers who have experienced a SIDS death that they, too, should seek out help and support. Contact information for the California SIDS Program and two national support groups is provided. The booklet also is available in English.

The Dougy Center for Grieving Children, Portland, OR
35 ways to help a grieving child.
Portland, OR: The Dougy Center for Grieving Children. 1999. 52p.

This guidebook is the result of feedback from thousands of grieving children and adolescents who have been helped by The Dougy Center for Grieving Children since it opened in 1982. The guide is intended for caring parents, teachers, and adult caregivers who want to support children who are grieving but are not sure how to go about it. Everyone grieves differently; grieving is influenced by cultural traditions, religious beliefs, family experience, and personality, so not all of the suggestions in this book will apply to every situation. The 35 ways caregivers can help a grieving child are listed in the guide. Includes descriptions of other guidebooks produced by The Dougy Center as well as a list of other recommended books for children organized according to age level.

Available from:
Dougy Center for Grieving Children
3909 SE 52nd Avenue
P.O. Box 86852
Portland, OR 97286
(503) 775-5683
(503) 777-3097 (Fax)
help@dougy.org (E-mail)
http://www.dougy.org/

Sanders DB, ed, Tarano E. trans.
Ayudando a los ninos con su pena: Sindrome de muerte infantil repentina [Helping Children Grieve: Sudden Infant Death Syndrome].
Rancho Cordova, CA: California SIDS Program. 1999. 13 p.

This booklet is directed at Spanish-speaking persons who care for children who have lost a sibling to sudden infant death syndrome (SIDS), including parents, grandparents, childcare providers, clergy, teachers, and other friends and relatives. When a baby dies suddenly with no warning, the whole family must cope with confusing emotions. Surviving siblings need a way to express their feelings, they need help and support, and they need to feel loved and valued. The booklet discusses the types of emotions that children may feel while grieving for an infant sibling who has died, including fear, anger, guilt, and sadness. The booklet also discusses when parents or others should worry about a child's reactions to the death; the importance of everyone talking about the death; what one should and should not say about where the baby went; siblings' participation in the funeral; ways in which siblings can remember the brother or sister who died; and how the level of understanding of death differs with a child's age.

California Department of Health Services, Maternal and Child Health Bureau
Hechos y sentimientos: Sindrome de muerte infantil repentina [Facts and Feelings: Sudden Infant Death Syndrome].
Rancho Cordova: California SIDS Program. 1999. 14 p.

Wegner-Hay M, Kostan-Schwartz R. ill.
Embracing Laura: The grief and healing following the death of an infant twin.
Omaha, NE: Centering Corporation. 1998. 20 p.

In this book the author relates the story of her pregnancy with twins and the trauma of losing one of them in utero. The book concludes with a list of suggestions for other parents who have experienced the loss of a twin or multiple.

Available from:
Centering Corporation
7230 Maple Street
Omaha, NE 68134
(402) 553-1200
(402) 553-0507 (Fax)
centering@centering.org (E-mail)
http://www.centering.org

Massachusetts Center for SIDS, Boston, MA
When a Baby Dies.
Boston, MA: Massachusetts Center for SIDS. 1998. 12 p.

This mini-booklet was developed by the Massachusetts SIDS Center to provide comfort to parents whose baby has died. Babies can die for many reasons, including miscarriage, stillbirth, premature birth, sudden or unexplained illness, infections, congenital or inherited problems, injuries, and sudden infant death syndrome (SIDS). Parents who wish to talk to a professional about the death should call the Massachusetts SIDS Center.

Available from:
Massachusetts Center for SIDS
Boston Medical Center
1 Boston Medical Center Place
Boston, MA 02118-2393
(617) 414-7437
(800) 641-7437 (in MA and RI)
(617) 414-5555 (Fax)
pediatrics.webmaster@bmc.org (E-mail)
http://www.bmc.org/pediatrics/special/SIDS/

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Bereavement and Grief Materials: A Selected Annotated Bibliography

Bereavement and Grief Materials:
A Selected Annotated Bibliography