Links
This section highlights national organizations
that provide information on SIDS and other infant death.
Highlighted Links
American Academy of Pediatrics
The American Academy of Pediatrics (AAP)
provides information, policy statements, practice
guidelines, child health resources, and other publications
from leading child health experts.
For more information, see http://www.aap.org.
In October 2005, the AAP Task Force on Sudden
Infant Death Syndrome released a policy statement that includes
revised recommendations to further reduce the risk of SIDS.
These can be found at http://www.aap.org/ncepr/revisedsids.pdf.
The Healthy Child Care America Back
to Sleep Campaign is an effort to build on the success
of AAP's Healthy Child Care America program and
the The National Institute of Child Health and Human Development's
(NICHD) Back to Sleep campaign to unite child care, health,
and national SIDS partners to reduce the incidence of SIDS
in family child care homes and center-based child care programs.
The campaign provides educational
materials and technical assistance to child care providers
and families.
For more information on the campaign, see
http://www.healthychildcare.org/section_SIDS.cfm.
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Association of SIDS and Infant Mortality Programs
The Association of SIDS and Infant Mortality
Programs (ASIP) is an association of health and human service
providers committed to bereavement support and risk-reduction
activities. ASIP promotes counseling, education,
advocacy, and research programs.
ASIP supports a public health approach, consisting
of culturally competent outreach and multidisciplinary services,
to provide a continuum of care to families.
ASIP also develops and promotes professional guidance and standards
for professional practice. ASIP co-sponsored the federal
government’s Back
to Sleep campaign and other risk-reduction
activities.
For more information, see http://www.asip1.org.
The National SIDS & Infant Death
Project IMPACT (Infant Mortality Policy and Communication
Tools) supports state and local infant death programs through
sharing information, promoting policy and legislative changes,
building upon resources, and fostering partnerships and communication.
Project IMPACT, a cooperative agreement between the federal
Maternal and Child Health Bureau (MCHB) and ASIP, is designed
to enhance communication among state and local programs,
and between these programs and federal and state policymakers.
To further this goal, project IMPACT launced the MCHB State-to-State
SIDS/Infant Death e-mail discussion list.
For more information on Project IMPACT, see http://www.sidsprojectimpact.com.
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CJ Foundation for SIDS
The CJ Foundation for SIDS is a nationwide
voluntary health organization dedicated to recognizing the
special needs of the SIDS community through funding SIDS research
and support services to SIDS.
The CJ Foundation sponsers national public-awareness
campaigns to implement risk-reduction messages, local volunteer-led
activities and events, professional-education programs, and
a national conference for professionals and families. The foundation
awards grants for SIDS research, support services, and public-awareness
programs. The foundation also communicates information to its
constituents on topics such as current research, ID
scene investigation protocols, and the AAP revised policy statement
on reducing the risk of SIDS.
In 2004 the CJ Foundation launched the Face
Up to Wake Up campaign to support the reduction of
SIDS among American Indians and Alaska Natives. In addition,
the foundation sponsored the development and dissemination
of a SIDS risk reduction resource kit throughout Indian
country, and it provided grants to expand
SIDS-risk-reduction activities in Indian communities.
For more information, see http://www.cjsids.com.
The CJ Foundation also sponsors the Sudden
Unexplained Death in Childhood Program (SUDC), which provides
a centralized resource for information, support and advocacy.
For more information on SUDC, see http://www.sudc.org/page.asp?id=1.
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First Candle/SIDS Alliance
First Candle/SIDS Alliance is a national
nonprofit health organization uniting parents, caregivers and
researchers nationwide with government, business and community
service groups to advance infant health and survival. With
help from a national network of member and partner organizations,
First Candle is working to increase public participation and
support in the fight against infant mortality.
First Candle/SIDS Alliance exists to promote
infant health and survival during the prenatal period through
age two with programs of research, education, and advocacy,
while at the same time providing compassionate bereavement
support to those experiencing an infant death. First Candle/SIDS
Alliance has expanded efforts to include SIDS, stillbirth,
and other infant deaths.
For more information, visit http://www.firstcandle.org.
First Candle/SIDS Alliance and the National
SIDS and Infant Death Program Support Center (NSIDPCS) has
indeed launched a national professional education campaign
that will target nurses in neonatal intensive care units (NICU)
and well-baby nurseries at birthing hospitals nationwide. It
is the ultimate goal of the campaign, Model Program: The
Most Important Modeling Job of your Life, to ensure that
every parent leaving a hospital is aware of and prepared to
adopt safe sleep messages as recommended by First Candle, the
AAP, NICHD and others.
The NSIDPSC will be distributing campaign
materials at regional and national nursing trainings and conferences
over the next year, and materials will be available on the
First Candle website and via telephone beginning May 1, 2006.
For materials, more information, or to schedule
a training workshop at your location, please contact Kathy
Graham or Hanan Kallash at 800.221.7437.
As a co-sponsor of the Back to Sleep campaign,
First Candle/SIDS Alliance released its updated checklist for
parents and caregivers on how to provide their babies with
the best possible chance to survive and thrive. These recommendations
are in keeping with the October 2005 announcement by the American
Academy of Pediatrics (AAP) regarding a revised policy statement
on reducing the risk of SIDS.
To view the checklist visit: http://www.firstcandle.org/media/Tips_for_Parents_and_Caregivers_October__05.pdf.
The First Candle/SIDS Alliance’s National
SIDS/Infant Death Program Support Center (NSIDPSC) provides
guidance and materials for caregivers and parents through educational
efforts on reducing the risk of infant death, and provides
compassionate grief support to those affected by an infant
death. It is NSIDPSC’s goal to ensure the availability of quality
educational and training materials and to promote collaboration
and coalition building within the professional community. NSIDPSC
is a cooperative agreement between the federal Maternal and
Child Health Bureau (MCHB) and First Candle/SIDS Alliance.
For more information on the Program Support
Center, visit: http://www.firstcandle.org/health/health_support.html.
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National Center for Cultural Competence
The mission of the National Center for Cultural
Competence (NCCC), Georgetown University Center for Child and
Human Development, is to increase the capacity of health and
mental health programs to design, implement, and evaluate culturally
and linguistically competent service-delivery systems.
NCCC uses four major approaches to fulfill
its mission, including (1) Web-based technical assistance,
(2) knowledge development and dissemination, (3) supporting
a "community of learners" and (4) collaboration and
partnerships with diverse constituency groups.
For more information, see http://www11.georgetown.edu/research/gucchd/nccc.
The NCCC SIDS/ID Project is
designed to impact state and local SIDS/ID programs, family
support and advocacy organizations, national organizations
related to SIDS/ID issues, and the three other national SIDS/ID
centers funded by MCHB.
Activities of the SID/ID Project are designed to increase the
capacity of these programs and organizations to incorporate
cultural and linguistic competence into their services and
support, materials and training efforts, and community engagement.
The NCCC SIDS/ID Project is a cooperative agreement between
MCHB and the Georgetown University Center for Child and Human
Development.
For more information on the SIDS/Infant Death
Project, see http://www11.georgetown.edu/research/gucchd/nccc/projects/sids.
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National Institute of Child Health and Human Development
The mission of the NICHD, part of the federal
National Institutes of Health, is to ensure that every person
is born healthy and wanted, that women suffer no harmful effects
from reproductive processes, and that all children have the
chance to achieve their full potential for healthy and productive
lives, free from disease or disability, and to ensure the health,
productivity, independence, and well-being of all people through
optimal rehabilitation. To reach that goal, NICHD supports
and conducts laboratory research and clinical trials and
sponsors training programs for scientists, doctors, and researchers.
For more information, see http://www.nichd.nih.gov.
NICHD was a co-sponsor of the Back
to Sleep campaign and is working to incorporate
new risk-reduction messages into all Back to Sleep
campaign materials. NICHD is committed to providing parents,
infant caregivers, and health professionals with the
most current information about SIDS through culturally
appropriate awareness campaigns and local educational programs.
NICHD is moving forward with its
research program to learn more about the causes of SIDS. NICHD
continues to look for ways to reduce SIDS risks and ultimately
to prevent the occurrence of SIDS.
For more information on the Back to Sleep
campaign, see http://www.nichd.nih.gov/sids.
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U.S. Consumer Product Safety Commission
The U.S. Consumer Product Safety Commission
(CPSC) is charged with protecting the public from unreasonable
risks of serious injury or death from more than 15,000 types
of consumer products under the agency’s jurisdiction. CPSC
is committed to protecting consumers and families from products
that pose a fire, electrical, chemical, or mechanical hazard such
as toys, cribs, infant products, blind cords and other strangulation
hazards, household chemicals, and incendiary devices that
can injure infants and children.
For more information, see http://www.cpsc.gov.
CPSC provides numerous publications for parents,
caregivers, and professionals in an effort to prevent infant
death and injury.
CPSC monitors thrift stores
and shops selling used cribs and other infant equipment and
provides education on cribs that are not safe to sell to consumers.
To view publications related to sleep
environment, see http://www.cpsc.gov/cpscpub/pubs/cribsafe.html.
CPSC provides over 4,000 product
recalls on potentially hazardous household products,
including infant and child toys, bedding, cribs, and clothing.
Consumers can receive E-mail alerts of recalls of products
in specific categories. The site also includes a mechanism
to report potentially hazardous products.
For more information on product recalls,
see http://www.cpsc.gov/cpscpub/prerel/prerel.html.
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Other Related Organizations
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
A
Alliance of Grandparents, A Support
in Tragedy (AGAST)
http://www.agast.org
American Academy of Pediatrics (AAP)
http://www.aap.org
American Academy of Physician Assistants
(AAPA)
http://www.aapa.org
American College of Nurse Midwives
(ACNM)
http://www.acnm.org
American College of Nurse Practitioners
(ACNP)
http://www.nurse.org/acnp
American College of Obstetricians
and Gynecologists (ACOG)
http://www.acog.org
American Public Health Association
(APHA)
http://www.apha.org
American SIDS Institute
http://www.sids.org
Association of American Indian Physicians
(AAIP)
http://www.aaip.com
Association for Death Education and
Counseling (ADEC)
http://www.adec.org
Association of Maternal and Child
Health Programs (AMCHP)
http://www.amchp.org
Association of SIDS and Infant Mortality
Programs (ASIP)
http://www.asip1.org
Association of State and Territorial
Health Officials (ASTHO)
http://www.astho.org
Association of Teachers of Maternal
and Child Health (ATMCH)
http://www.atmch.org
Association of Women’s Health, Obstetric,
and Neonatal Nurses (AWHONN)
http://www.awhonn.org
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B
Bereavement Services/Gundersen Lutheran
Medical Foundation
http://www.bereavementprograms.com
http://www.gundluth.org
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C
Canadian Foundation for the Study
of Infant Deaths
http://www.sidscanada.org
Center for Infant and Child Loss
http://www.infantandchildloss.org
Center for Loss and Life Transition
http://www.centerforloss.com
Center for Loss in Multiple Births,
Inc. (CLIMB)
http://www.climb-support.org
Centers for Disease Control and Prevention
(CDC)
http://www.cdc.gov
Children's Safety Network (CSN)
http://www.childrenssafetynetwork.org
CityMatCH
http://www.citymatch.org
CJ Foundation for SIDS
http://www.cjsids.com
Compassionate Friends
http://www.compassionatefriends.org
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D
First Candle/SIDS Alliance
http://www.firstcandle.org
Foundation for the Study of Infant
Deaths (FSID)
http://www.sids.org.uk/fsid/
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H
Head Start Bureau, Administration
for Children and Families
http://www.acf.dhhs.gov/programs/hsb
Health Resources and Services Administration
(HRSA)
http://www.hrsa.gov
http://www.ask.hrsa.gov
Healthy Child Care America Back to
Sleep Campaign (AAP)
http://www.healthychildcare.org/section_SIDS.cfm
Healthy Teen Network (HTN)
http://www.noapp.org
Hospice Foundation of America (HFA)
http://www.hospicefoundation.org
Hygeia Foundation, Inc.
http://www.hygeia.org
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I
Indian Health Service (IHS)
http://www.ihs.gov
International Society for the Study
and Prevention of Infant Death
http://www.ispid.org/ispid/ispid_start.html
International Stillbirth Alliance
http://www.stillbirthalliance.org
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M
March of Dimes (MOD)
http://www.modimes.org
Maternal and Child Health Bureau
(MCHB)
http://www.mchb.hrsa.gov
MISS Foundation
http://www.missfoundation.org
Mommies Enduring Neonatal Death (MEND)
http://www.mend.org
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N
National Alaska Native American Indian
Nurses Association (NANAINA)
http://www.nanaina.com
National Association of Community
Health Centers (NACHC)
http://www.nachc.org
National Association for the Education
of Young Children (NAEYC)
http://www.naeyc.org
National Association of Emergency
Medical Technicians (NAEMT)
http://www.naemt.org
National Association for Family Child
Care (NAFCC)
http://www.nafcc.org
National Association of Hispanic
Nurses (NAHN)
http://www.thehispanicnurses.org
National Association of Medical Examiners
(NAME)
http://www.thename.org
National Association of Neonatal
Nurses (NANN)
http://www.nann.org
National Association of Nurse Practitioners
in Women’s Health (NPWH)
http://www.npwh.org
National Association of Pediatric
Nurse Practitioners (NAPNAP)
http://www.napnap.org
National Black Nurses Association
(NBNA)
http://www.nbna.org
National Center for Cultural Competence
SIDS/ID Component (NCCC)
gucdc.georgetown.edu/nccc
National Center for Education in
Maternal and Child Health (NCEMCH)
http://www.ncemch.org
National Child Care Information Center
(NCCIC)
http://www.nccic.org
National Fetal and Infant Mortality
Review Program (NFIMR)
http://www.acog.org/goto/nfimr
National Funeral Directors Association
(NFDA)
http://www.nfda.org
National Head Start Association (NHSA)
http://www.nhsa.org
National Health Information Center
(NHIC)
http://www.health.gov/nhic
National Healthy Mothers/Healthy
Babies Coalition (HMHB)
http://www.hmhb.org
National Healthy Start Association
(NHSA)
http://www.healthystartassoc.org
National Institute of Child Health
and Human Development (NICHD)
http://www.nichd.nih.gov/sids/sids.cfm
http://www.nichd.nih.gov/publications/pubskey.cfm?from=sids
National MCH Center for Child Death
Review
http://www.childdeathreview.org
National Medical Association (NMA)
http://www.nmanet.org
National Partnership to Help Pregnant
Smokers Quit
http://www.helppregnantsmokersquit.org
National Perinatal Association (NPA)
http://www.nationalperinatal.org
National Resource Center for Health
and Safety in Child Care
nrc.uchsc.edu/
National Rural Health Association
(NRHA)
http://www.nrharural.org
National SIDS and Infant Death Program
Support Center (NSIDPSC)
http://www.firstcandle.org/health/health_human.html
National SIDS/Infant Death Project
IMPACT
http://www.sidsprojectimpact.com
National SIDS/Infant Death Resource
Center (NSIDRC)
http://www.sidscenter.org
National Stillbirth Society
http://www.stillnomore.org/main.htm
National WIC Association
http://www.nwica.org
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S
SAFE KIDS Worldwide
http://www.safekids.org
SHARE Pregnancy and Infant Loss Support,
Inc.
http://www.nationalshareoffice.com
SIDS Educational Services, Inc.
http://www.sidssurvivalguide.org
SIDS Network
http://www.sids-network.org
Society of Pediatric Nurses (SPN)
http://www.pedsnurses.org
Society of Teachers of Family Medicine
(STFM)
http://www.stfm.org
Southwest SIDS Research Institute
http://www.swsids.com
SPALS: Subsequent Pregnancy After
Loss Support
http://www.spals.com
Student National Medical Association
(SNMA)
http://www.snma.org
Sudden Unexplained Death in Childhood
Program (SUDC)
http://www.sudc.org
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T
The Dougy Center
http://www.dougy.org
Triplet Connection
http://www.tripletconnection.org
Twinless Twins Support Group
http://www.twinlesstwins.org
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U
U.S. Consumer Product Safety Commission
(CPSC)
http://www.cpsc.gov
U.S. Department of Health and Human
Services
Administration for Children and Families (ACF)
http://www.acf.hhs.gov
U.S. Department of Health and Human
Services
Office of Minority Health (OMH)
http://www.omhrc.gov
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W
Wendt Center for Loss and Healing
http://www.lossandhealing.org
WIC Program (Women, Infants, and
Children)
http://www.fns.usda.gov/wic
World Health Organization
Statistical Information System (WHOSIS)
http://www3.who.int/whosis/menu.cfm?path=whosis,mort
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Z
Zero to Three
http://www.zerotothree.org
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